Logan’s Story

Logan in HospitalMy name is Logan Vachon.  I am a one year old and I have been diagnosed with a very rare genetic disorder called Nephropathic Cystinosis.

Cystinosis is a rare, genetic metabolic disease that causes the amino acid cystine to accumulate in various organs of the body. Without specific treatment, children with Cystinosis develop end stage kidney failure at approximately age nine. The availability of cysteamine medical therapy has improved to the point that well-treated cystinosis patients can live into adulthood.

As with other rare disorders, treatments for cystinosis are limited and expensive.  My parents work hard and have health insurance, but it just doesn’t cover enough and they are having to make very tough choices in order to ensure that I get my treatments.  Any donation that you are willing to make in order to help me continue my treatments would be greatly appreciated!  Thank you!

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